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Essential Measures are only those items that are critical to the collection of the Measure or are necessary for the interpretation of results. Essential Measures are integral to the Measure. Without such information the data collected would be incomplete and/or misleading.
An additional PhenX Measure that the user may find helpful based on the selection of a particular PhenX Measure. Related PhenX Measures can include additional Measures that are needed to calculate a Derived Variable (e.g., Weight and Height are needed to calculate BMI), Measures that are commonly used in presentations and publications to present the value of the chosen Measures (e.g., Height and Weight by Race and Ethnicity), Measures that are conceptually related to the chosen Measure (e.g., Current Educational Attainment is conceptually related to Annual Family Income and Arm Span is conceptually related to Height), Measures that are physiologically and/or biologically related to the chosen Measure (e.g., Stroke and Heart Disease). Related PhenX Measures are suggestions only.
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Sickle Cell Disease: Neurology, Quality of Life, and Health Services Specialty Collection

Browse » Collections » Sickle Cell Disease » Sickle Cell Disease: Neurology, Quality of Life, and Health Services Specialty Collection » Quality of Care

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Measure: Quality of Care   #820100

Definition: A measure used to assess patient-reported utilization and perceptions about quality of care for individuals treated for sickle cell disease (SCD).

Purpose: These questions are used to assess the patient-reported health care needs and quality of service from health care providers for individuals with chronic conditions such as sickle cell disease (SCD).


Keywords: Adult Sickle Cell Quality-of-Life Measurement Information System, ASCQ-Me, Consumer Assessment of Healthcare Providers and Systems, CAHPS Health Plan Survey, Child Medicaid Survey, Sickle cell disease, SCD, Quality of care, Quality of life, QOL, Pain, Emergency room visits, ER visits, CAHPS, Health care utilization, Patient perspective

Measure Release Date: July 30, 2015

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